Assessing the quality of life of adolescents with diabetes: Using the SEIQoL, DQoL, patient and diabetes specialist nurse ratings

摘要

This pilot study aimed to evaluate the quality of life (QoL) of adolescents with type 1 diabetes mellitus using an individualised interview measure (SEIQoL) and a first generation diabetes-specific questionnaire (DQoL), and to compare patients ratings with those given by their diabetes specialist nurse. When asked to name the five most important domains of life for their quality of life, adolescents with diabetes spontaneously generated three common domains: family, friends and school. The remaining two domains varied, but could be covered by a further seven domains. Despite knowing the patients well, the nurse had great difficulty rating their QoL, diabetes-related QoL or identifying factors important for their QoL. For the adolescents, diabetes as not always the most important domain affecting QoL, nor was their evaluation of their diabetes a good predictor of overall QoL. These data indicate that need for individualised questionnaire measures of QoL, which have now been designed for routine use withadolescents with diabetes. Copyright < copyright > 2002 John Wiley & Sons, Ltd.