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We agree with hansson and maschke that early-life events affect adult health. Our question was how to best protect the privacy and autonomy of children. Human genetics knowledge is rapidly changing; policies that were assumed to be sufficient for protecting research participants' privacy and autonomy decades ago are no longer adequate in the age of direct online data access and Web-based personal genomics (1, 2). Scholars now agree that true anonymization cannot be assured (3).
机译:我们同意汉森和马斯克的观点,即早期事件会影响成人健康。我们的问题是如何最好地保护儿童的隐私和自主权。人类遗传学知识正在迅速变化。在直接在线数据访问和基于Web的个人基因组学时代,几十年前被认为足以保护研究参与者的隐私和自治的政策已不再足够(1、2)。现在,学者们同意不能保证真正的匿名化(3)。

著录项

  • 来源
    《Science》 |2009年第5954期|799|共1页
  • 作者单位

    National Laboratory for the Genetics of Israeli Populations, Department of Human Molecular Genetics and Biochemistry, Sadder Faculty of Medicine, Tel Aviv University, Tel Aviv 69978, Israel;

    P3G, 3333 Queen Mary Road, Suite 590, Montreal, Quebec H3V 1A2, Canada;

    European Centre for Public Health Genomics, Faculty of Health, Medicine and Life Sciences, Maastricht University, 6200 MD Maastricht, Netherlands Department of Molecular Cell Physiology, VU University Amsterdam, 1081 HV Amsterdam, Netherlands;

    Centre of Genomics and Policy, Faculty of Medicine, Department of Human Genetics, McGill University, Montreal, Quebec H3A 1A4, Canada;

  • 收录信息 美国《科学引文索引》(SCI);美国《工程索引》(EI);美国《生物学医学文摘》(MEDLINE);美国《化学文摘》(CA);
  • 原文格式 PDF
  • 正文语种 eng
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  • 入库时间 2022-08-18 02:55:18

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