At home with disability: one family’s three generations narrate autism

摘要

We examined the lived experiences of a Cypriot family with a young child with autism. Semi‐structured interviews with parents, siblings, and extended family members across three generations and observations of the family’s daily activities were the primary data‐generating methods. Critical events related to the disability diagnosis, the mother’s decision to undertake a significant role in the child’s education following negative interactions with professionals, and the family’s daily accommodations to the child’s needs emerged in narratives of multiple participants. Family narratives reflect the polyphony of experiences and responses shared by participants. The study illuminates the complexities of this experience and offers opportunities to rethink the interplay of disability, family, and culture in the context of research and practice.View full textDownload full textKeywordsdisability, family narratives, qualitative case study, cultural diversityRelated var addthis_config = { ui_cobrand: "Taylor & Francis Online", services_compact: "citeulike,netvibes,twitter,technorati,delicious,linkedin,facebook,stumbleupon,digg,google,more", pubid: "ra-4dff56cd6bb1830b" }; Add to shortlist Link Permalink http://dx.doi.org/10.1080/09518398.2010.529841