首页> 外文期刊>Clinical and experimental rheumatology >Assessment of quality of rheumatoid arthritis care requires joint count and/or patient questionnaire data not found in a usual medical record: examples from studies of premature mortality, changes in clinical status between 1985 and 2000, and a QUEST-RA g
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Assessment of quality of rheumatoid arthritis care requires joint count and/or patient questionnaire data not found in a usual medical record: examples from studies of premature mortality, changes in clinical status between 1985 and 2000, and a QUEST-RA g

机译:对类风湿关节炎护理质量的评估需要在常规医疗记录中找不到的关节计数和/或患者问卷调查数据:过早死亡研究,1985年至2000年临床状况变化以及QUEST-RA g的示例

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ABSTRACT: Quality of care of many diseases, such as diabetes, hypertension, hyperlipidemia, and osteoporosis, can be assessed effectively from information in usual medical records concerning blood tests, blood pressure, bone density, etc. However, quality of care of rheumatoid arthritis (RA), as well as most rheumatic diseases, cannot be assessed from usual medical records. The primary basis for this problem involves limitations of laboratory tests and the absence of a single a€?gold standarda€? measure in RA Therefore, indices which include laboratory tests, joint counts, and patient questionnaires have been developed. These indices are collected in all RA clinical trials and other clinical research, but not in usual clinical care, a phenomenon which may limit severely possible assessment and improvement of quality and patient outcomes. Patient questionnaires and joint counts, rather than laboratory tests or radiographs in a medical record, are the best measures to assess and monitor RA patient status. Patient questionnaires are the most significant clinical prognostic markers for severe long-term RA outcomes, such as work disability, costs and premature mortality, and are more cost-effective and easily-collected than formal quantitative joint counts in busy clinical settings. The value of patient questionnaires and joint counts in RA is reviewed in three examples from the authorsa€? research concerning premature mortality in RA, changes in patient clinical status between 1985 and 2000, and a QUEST-RA global perspective, to better evaluate the structure, processes, and outcomes of RA care.
机译:摘要:许多疾病(例如糖尿病,高血压,高脂血症和骨质疏松症)的护理质量可以通过常规医学记录中有关血液测试,血压,骨密度等的信息进行有效评估。但是,类风湿关节炎的护理质量(RA)以及大多数风湿性疾病,无法从常规医疗记录中进行评估。此问题的主要依据是实验室测试的局限性以及缺少单一的金标准。因此,已经开发出包括实验室检查,关节计数和患者问卷的指数。这些指数是在所有RA临床试验和其他临床研究中收集的,但在常规临床护理中却没有收集,这种现象可能会严重限制可能的评估以及质量和患者预后的改善。评估和监视RA患者状态的最佳方法是患者问卷和关节计数,而不是实验室记录或医学记录中的X光片。患者问卷是严重的RA长期预后的最重要的临床预后指标,例如工作能力,成本和过早死亡,并且在繁忙的临床环境中比正式的定量联合计数更具成本效益且易于收集。作者从三个例子中回顾了RA患者问卷和关节计数的价值。有关RA的过早死亡,1985年至2000年之间患者临床状况的变化以及QUEST-RA的全球观点的研究,以更好地评估RA护理的结构,过程和结果。

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