Constructing a mutually supportive interface between ethics and regulation

摘要

When the word & rsquo;ethical & rsquo; becomes synonymous with specious, you know that something is amiss. With each data governance scandal, with each creation of a corporate & rsquo;ethics board & rsquo;, & rsquo;ethical standards & rsquo; seemingly lose a few more feathers, to the point of generating instant suspicion when invoked in any official report. We argue that a key challenge in this regard is to more precisely define the ethics-regulation interface. In order to do this, we first provide an overview of recent endeavours to develop ethical frameworks around technology. We then look at a successful process of refinement of the ethics-regulation interface: the case of healthcare ethics in the UK. The third section develops an account of what a more robust ethics-regulation interface could look like, which would support a process of crossfertilisation between the political, ethical and legal approaches. Finally, the fourth and last section critically examines a & lsquo;live & rsquo; implementation of such ethics-regulation interface, as put forward in Quebec & rsquo;s & lsquo;Bill 29 ' .(c) 2021 Sylvie Delacroix and Ben Wagner. Published by Elsevier Ltd. This is an open access article under the CC BY license ( http://creativecommons.org/licenses/by/4.0/ )