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Haemoglobinopathy Awareness among Young Students in Turkey: Outcomes of a City-Wide Survey

机译:土耳其青年学生的血红蛋白病意识:一项全市调查的结果

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摘要

The success of prevention programs demonstrated the importance of raising awareness about haemoglobinopathies since the lack of knowledge and awareness about the disorders may serve as barriers to prevention, disclosure of disease status as well as to testing for haemoglobinopathies. The aim of this study is to investigate the knowledge and attitudes of middle and high school students towards haemoglobinopathies in Hatay, where the disorders are prevalent. This cross-sectional study was conducted on 8th and 9th grade students across Hatay including all sub provinces. From May 2012 to December 2012, a total of 1925 students filled the questionnaires which query the knowledge level and attitudes of students by face to face method. Among questions regarding students’ knowledge about haemoglobinopathies, the lowest correct response rate was observed in “How do these diseases transmit?” with 31.8%, meaning most of the students did not know that the diseases are transmitted by heredity. Significant differences were observed between the correct answer rates of the students and their status of being previously informed. Students who had a diseased person around were having a 2.597-fold (95%CI = 1.886–3.575); students possessing at least one parent at secondary education level or above were having a 1.954-fold higher probability of being previously informed (95%CI = 1.564–2.443). Due to the lack of knowledge about haemoglobinopathies in middle and high school students, we suggest health education programs including informative lectures particularly about the genetic basis of the disorders especially in the regions where the disorders are prevalent.
机译:预防计划的成功表明了提高对血红蛋白病的认识的重要性,因为对疾病的认识和认识不足可能会成为预防,疾病状况披露以及检测血红蛋白病的障碍。这项研究的目的是调查在中部地区高发地区的中学生对血红蛋白病的知识和态度。这项横断面研究是在Hatay(包括所有子省)的8年级和9年级的学生中进行的。从2012年5月至2012年12月,共有1925名学生填写了问卷,以面对面的方式查询学生的知识水平和态度。在有关学生对血红蛋白病的认识的问题中,“这些疾病如何传播”的正确应答率最低。占31.8%,这意味着大多数学生不知道疾病是由遗传传播的。在学生的正确回答率与他们先前被告知的状态之间,观察到了显着差异。周围患病的学生的患病率是2.597倍(95%CI = 1.886–3.575);至少拥有一名父母的中级或以上学历的学生被告知的可能性要高1.954倍(95%CI = 1.564–2.443)。由于缺乏对中学生血红蛋白病的知识,我们建议开展健康教育计划,包括提供有益的演讲,尤其是有关疾病的遗传基础的演讲,尤其是在该疾病流行的地区。

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