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Focus: Translational Medicine: Getting a Head Start: The Importance of Personal Genetics Educationin High Schools

机译:重点:转化医学:抢先一步:个人遗传学教育的重要性在高中

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摘要

With advances in sequencing technology, widespread and affordable genome sequencing will soon be a reality. However, studies suggest that “genetic literacy” of the general public is inadequate to prepare our society for this unprecedented access to our genetic information. As the current generation of high school students will come of age in an era when personal genetic information is increasingly utilized in health care, it is of vital importance to ensure these students understand the genetic concepts necessary to make informed medical decisions. These concepts include not only basic scientific knowledge, but also considerations of the ethical, legal, and social issues that will arise in the age of personal genomics. In this article, we review the current state of genetics education, highlight issues that we believe need to be addressed in a comprehensive genetics education curriculum, and describe our education efforts at the Harvard Medical School-based Personal Genetics Education Project.
机译:随着测序技术的进步,广泛且负担得起的基因组测序将很快成为现实。但是,研究表明,普通大众的“遗传素养”不足以使我们的社会为这种前所未有的遗传信息获取准备。由于当前这一代高中生将进入一个时代,在医疗保健中越来越多地使用个人遗传信息,因此确保这些学生了解做出明智医疗决定所必需的遗传概念至关重要。这些概念不仅包括基本的科学知识,而且还考虑了在个人基因组学时代将出现的道德,法律和社会问题。在本文中,我们回顾了遗传学教育的现状,重点介绍了我们认为需要在全面的遗传学教育课程中解决的问题,并描述了我们在基于哈佛医学院的个人遗传学教育项目中的教育工作。

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