目的：了解脑肿瘤手术患者家庭主要照顾者的照顾体验及内心感受，为制订切实可行的针对性护理策略提供理论依据。方法采用质性研究中的现象学研究方法，对18名脑肿瘤手术患者的家庭主要照顾者进行访谈，了解他们在患者围手术期及家庭照顾中的感受，并对资料进行分析。结果脑肿瘤手术患者家庭主要照顾者照顾体验及内心感受归纳3个主题：个人情感应对缺陷；疾病的管理经验欠缺；社会支持需求迫切。结论了解脑肿瘤手术患者家庭照顾者照顾体验及内心感受，有助于促进护理人员对患者家庭主要照顾者心理困境的关注及需求情况的了解，为其提供针对性的情感支持、专业知识及技术指导，改进患者家庭主要照顾者角色责任转变的适应能力，以减轻其照顾压力。%Objective To look into the experience and feels of the family caregivers of brain tumor patients undergoing surgery. Methods The phenomenological methodology was used in the study. Eighteen family caregivers nursing brain tumor patients were selected as our target. Semi-structured interviews were performed to investigate their feelings and experience during the preoperative period. Result Three topics from our study were concluded: inappropriate emotional reaction, inexperience in the disease management and insufficiency in social support. Conclusion Medical staff and institutions should provide emotional, nursing technical support and professional knowledge for the caregivers so that they can improve their adaption ability and relieve the stress.
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