Invisible scars: The psychological impact of severe burns on siblings.

摘要

The research on the impact of childhood illness and disability on the family system has been increasing over recent years. Specifically, researchers have been focusing on the impact of childhood illness and injury on the sibling population. Previous studies on sibling populations of children with chronic illness and disability have identified a myriad of psychological, behavioral, and social changes in siblings. The present study looked to siblings of children with severe burns to describe their own experiences. The data for this qualitative study was collected from interviews with five siblings of children treated for severe burns at the Shriner's Burn Hospital in Boston. Participants, ranging in ages from 8 to 18, were interviewed using open-ended interview questions developed for siblings of children with burns. The questions were developed based on the results from the only published research that has been conducted with this population (Mancuso, et al. 2003). In addition, interview questions were based upon previous literature with siblings of children with chronic illness and disability. The interviews were analyzed using Smith's Interpretative Phenomenological Analysis approach to explore the sibling's own view of their experience and identify themes, beliefs, and connections among the data (Smith, Jarman, Osborn, 1999). Results included themes of changes in family routine and structure, perceived increased responsibilities, additional worry and stress in family members, avoidance of fire or burn agents, changes in the burn patient, closer family relationships, and opportunities for siblings to have new experiences.