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Knowledge and attitudes of consumers about genetic discrimination and the GINA: Genetics Information Non-Discrimination Act of 2008.

机译:消费者对基因歧视和GINA的知识和态度:2008年《遗传信息非歧视法》。

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摘要

This study examines consumer knowledge and attitudes about the enactment of the 2008 Federal Genetic Information Non-Discrimination Act (GINA), and genetic discrimination. Genetic discrimination has been a growing concern over the last decade, and the enactment of GINA is predicted to increase patient protection regarding genetic testing. Anonymized data was collected from three sources: members of the advocacy group Facing Our Risk of Cancer Empowered (FORCE), clients seen in the Division of Human Genetics Clinical Cancer Genetics Program at The Ohio State University, and clients seen at the Bennett Cancer Center Clinical Genetics Programs at Stamford Hospital. Data was assessed for knowledge and attitude of genetic discrimination. The majority of individuals have a neutral attitude in regards genetic discrimination, and moderate knowledge. Both provider and consumer education of genetic discrimination and genetic discrimination legislation need to be improved in the future, as genetic information continues to be further integrated into medical care and prevention.
机译:这项研究调查了消费者对2008年《联邦遗传信息非歧视法》(GINA)的制定以及遗传歧视的认识和态度。在过去的十年中,遗传歧视一直是人们日益关注的问题,并且GINA的颁布预计将提高患者对遗传检测的保护。匿名数据来自以下三个来源:倡导小组“面对我们的癌症风险”(FORCE)成员,在俄亥俄州立大学人类遗传学临床癌症遗传学计划中见过的客户以及在贝内特癌症中心临床中见过的客户斯坦福医院的遗传学计划。对数据进行遗传歧视知识和态度评估。大多数人在遗传歧视和中等知识方面持中立态度。随着遗传信息继续被进一步整合到医疗和预防中,将来需要改进对遗传歧视和遗传歧视立法的提供者和消费者的教育。

著录项

  • 作者

    Garrison, Amy.;

  • 作者单位

    Sarah Lawrence College.;

  • 授予单位 Sarah Lawrence College.;
  • 学科 Law.;Education Health.;Health Sciences Public Health.
  • 学位 M.S.
  • 年度 2010
  • 页码 45 p.
  • 总页数 45
  • 原文格式 PDF
  • 正文语种 eng
  • 中图分类
  • 关键词

  • 入库时间 2022-08-17 11:36:41

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