The lived experiences of adults with sickle cell anemia: A phenomenological study.

摘要

This qualitative study examined the experiences of adults over the age of 30 with sickle cell anemia. The scientific basis of this study was the documented problem that nurses lacked understanding of the experiences of individuals affected with this disease and its sequalae as reflected in the lack of substantive knowledge in the literature. 10 subjects were recruited through local physician referrals for participation. Through the use of phenomenological methodology, individual interviews were conducted to explore the experiences of adults with sickle cell anemia, and how these experiences affected their daily lives. Group interviews were conducted for validation of data collected. Data analysis was completed using Colaizzi's method for analysis and theme extractions. Two major themes were extracted, the need to survive and the need to be understood, with lesser theme identification. Implications were provided for nursing practice, education, and research.