Clinical Guideline-Driven Personalized Self-Management Diary for Paediatric Cancer Survivors

摘要

Shared Decision Making (SDM) is the process of patients and clinicians working together to manage medical treatment using the existing knowledge base. This paper presents the YouCan framework, a system for summarizing and presenting the necessary knowledge for SDM related to pediatric cancer follow-up management. Knowledge modelling of a Clinical Practice Guideline produced a customized ontology, which was then passed through a pellet reasoned to produce a customized patient diary that summarizes a patient's oncological history as well as the potential issues they may face in follow-up.