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Freedom from Unwarranted Experimentation

机译:免于无根据的实验

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This is a declaration of the fundamental human right of all people, simply by virtue of being human, to be free from subjection to all forms of experimentation unless they voluntarily consent to participate after being fully informed of all risks by qualified experts in all relevant fields. Further, it asserts that everyone retains the right to opt out of any experiment, each of their own accord, and at any time, even after consent has been freely given and the experiment is underway. This paper argues for the urgent need to broadly expand the definition of human research in order to extend protections against illicit experimentation far beyond the boundaries of formal medical and scientific research; to recognize the full scope of ethical principles embodied in the Nuremberg Code of 1947; and, ultimately, to enact these protections into law. In support of these contentions, three primary examples have been chosen to illustrate recent and widespread violations of these fundamental rights. Examples have been chosen from social media, the tobacco industry, and wind energy production precisely because they fall well outside this boundary of formal human research as conventionally defined, and they demonstrate the need for wider protections in all walks of life, as a fundamental dictate of social justice.
机译:这是所有人的基本人权的宣言,只要凭借人类,就是摆脱所有形式的实验,除非他们自愿同意在所有相关领域的合格专家完全了解所有风险之后参加。 。此外,它断言每个人都保留了选择退出任何实验的权利,每个人都可以在任何时候,即使在自由发出并进行实验后,即使经过同意。本文认为,迫切需要大概扩大人类研究的定义,以延长对超出正式医疗和科学研究的界限的非法实验的保护;认识到1947年纽伦堡守则所体现的伦理原则的全部范围;最终,为了法律制定这些保护。为了支持这些争议,已选择三个主要示例,以说明近期和广泛的违反这些基本权利的行为。精确地选择了烟草业,烟草行业和风能生产中的例子,因为它们远离正式人类研究的边界,作为传统定义,他们展示了在各行各业中进行更广泛的保护,这是一个基本的决定社会正义。

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