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Partners’ experiences of relationship continuity in acquired brain injury

机译:合作伙伴在获得性脑损伤中的关系连续性经验

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Background : Research in dementia suggests that spousal carers differ in terms of whether they perceive their relationship with the person with dementia as continuous with the pre-morbid relationship or as radically changed, and that these differences may be associated with how spouses respond to the challenges of care-giving. The aim of this study was to explore whether the conceptual framework of relationship continuity (which comprises five dimensions) may also be applicable to understanding the experience of spousal carers in acquired brain injury. Method : Five spouses were interviewed about their relationship, and the data were analysed using Template Analysis. The applicability of the framework was evaluated by assessing (1) whether the accounts of each participant provided material relevant to each of the five dimensions of relationship continuity, and (2) whether the accounts suggested a close link between the dimensions (i.e. whether participants who showed continuity on one dimension tended to show continuity on the other dimensions). The association between continuity/discontinuity and responses to the challenges of care-giving was also explored. Findings : Findings suggested that the two criteria were met and that the framework may be useful in understanding the experience of spousal carers in brain injury. Furthermore, those who perceived discontinuity drew on medical models for making sense of changes in their partner, experienced greater subjective burden, and expressed doubts about remaining within the relationship. Those who perceived discontinuity also reported experiencing less warmth and affection from their partner.
机译:背景:痴呆症的研究表明,配偶照顾者在与痴呆症患者的关系是持续病前关系还是从根本上改变方面都存在差异,这些差异可能与配偶的反应方式有关应对护理的挑战。这项研究的目的是探讨关系连续性的概念框架(包括五个维度)是否也可用于理解配偶照顾者在获得性脑损伤中的经历。方法:对五名配偶的关系进行访谈,并使用模板分析法对数据进行分析。通过评估(1)每个参与者的账目是否提供与关系连续性五个维度中的每个维度相关的实质性内容,以及(2)账户是否暗示了维度之间的紧密联系(即参与者是否在一个维度上显示连续性,而在另一个维度上显示连续性。还探讨了连续性/不连续性与对护理挑战的反应之间的联系。结果:研究结果表明两个条件均得到满足,并且该框架对于理解配偶照顾者在脑损伤中的经历可能是有用的。此外,那些认为不连续的人会使用医学模型来了解伴侣的变化,承受更大的主观负担,并对保持恋爱关系表示怀疑。那些感觉到不连续的人还报告说,伴侣的热情和感情有所减轻。

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